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Research
Area: Environment Group
Title: Deliberative Mapping: Piloting an innovative public consultation process with the case of xenotransplantation and organ failure
Start Date: 01-06-2001
End Date: 01-03-2003
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Sponsor:
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SPRU (Wellcome Trust)
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Status:
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Completed
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Summary
Background
Recent advances in biotechnology and the medical sciences raise the
possibility of a host of new treatments and cures for disease. At the same
time the state of the nation's health services dominates political debate.
Furthermore, in the wake of BSE the public is increasingly distrustful of
government and scientific expertise. There is a growing climate of concern
and unwillingness to accept technological developments seen as threatening
deeply held values or potential risks to human health and the natural world.
In part this is because established 'scientific' risk assessment techniques
have proved incapable of dealing effectively with significant scientific
uncertainty or of incorporating the full range of the public's concerns.
One response to the declining authority of government and science has been
to seek to increase the legitimacy and democratic accountability of
decision-making through new public consultation techniques - emphasising
face-to-face deliberation between experts and stakeholders, and the
inclusion of a range of social groups. However, many of these new techniques
can be criticised for a lack of rigour and transparency, an undue emphasis
on consensus and a failure to influence real decisions. More fundamentally,
major problems arise for both established risk assessment techniques and new
consultative approaches where decisions must be made about complex
scientific and technological questions that raise difficult social,
economic, cultural and ethical concerns.
Aims:
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To examine how far scientific, expert-driven risk assessment techniques
can be reconciled with deliberative approaches to public consultation
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To develop a new approach to public consultation and technology
assessment, called Deliberative Mapping
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To test this new approach through a full-scale public consultation
exercise - involving a range of experts and four North London based
citizens' panels - in an assessment of the future options for the
treatment of human organ failure
Project Design
The Deliberative Mapping project runs from June 2001 to March 2003. It
draws upon previous work, at SPRU - Science and Technology Policy
Research at the University of Sussex and the Environment and Society
Research Unit (ESRU) University College, developing complementary
processes for eliciting different factors underlying decisions about
contentious environmental and technological risks.
The project will begin by setting up a panel of specialists,
representing the range of interests concerned with the transplantation
debate. These will be interviewed to provide quantitative and
qualitative pictures of their own assessments of the range of
transplantation options, and who will later serve as expert witnesses
for the lay participants. A public opinion survey will be undertaken in
North London to establish a snap shot of popular concerns and also to
assist with the recruitment of four lay Citizens Panels. Each panel will
then take part in a series of workshops, which will employ both
quantitative and qualitative assessment techniques to build up a
detailed picture of the participants' knowledge, value judgements and
beliefs concerning the range of transplantation options, both before and
after structured interaction with the specialist panel. Finally the
specialists will also be re-interviewed to establish how their dialogue
with the Citizens Panels might have affected their initial views.
Importance of Research
The Deliberative Mapping project seeks to integrate expert and citizen
assessments within a new transparent framework for public consultation
that emphases diversity and social learning as the basis for more
robust, democratic and accountable decision-making.
Further details of this project are available at
http://www.deliberative-mapping.org
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